
“There is space here for everything this journey brings.”
For some, living with ALS can be accompanied by grief for losses already experienced, anticipatory grief, chronic uncertainty, anxiety about what lies ahead, exhaustion, despair, existential questioning, strained relationships, frustration, or a deep sense of vulnerability. Many people struggle with shifts in identity, autonomy, communication, and meaning, alongside the toll of ongoing medical care. Loved ones and caregivers may experience burnout, guilt, helplessness, or conflicting emotions they don’t feel they can share elsewhere. Therapy can help you and your loved ones make sense of this experience, reduce emotional distress, and create room for honesty, dignity, and meaning throughout the journey.
Therapy for Those Living with ALS Can Help With
Processing Grief & Complex Emotions
Navigating Roles & Boundaries
Therapy Could Help you
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Process grief, loss, and anticipatory mourning
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Regulate anxiety and emotional distress
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Navigate identity and role changes
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Strengthen communication with loved ones
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Explore meaning, values, and legacy
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Tolerate uncertainty with greater steadiness
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Address fear around dependency and decline
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Maintain connection and intimacy
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Make sense of complex family dynamics
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Reduce caregiver burnout and emotional fatigue
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Hold space for existential questions
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Live with intention, dignity, and care


Resources to Support Your Journey
Mental Health Support for People Living with ALS/MND and Caregivers — The International Alliance of ALS/MND Associations
Supporting Children When a Loved One Has ALS — Massachusetts General Hospital & Healy and AMG Center for ALS
Understanding Amyotrophic Lateral Sclerosis (ALS): A Clinical and Personal Perspective— ALS Association

